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On pregnant women and disabled children, in a society that cares for neither

For as long as I can remember, women have been warned to adjust our behaviour – before and during pregnancy (as if there was no third option) – to keep us from having disabled children. Don’t smoke. Don’t drink. Don’t get pregnant after 40. Take folic acid. The need to prevent the birth of disabled children has become such a societal imperative that women have found themselves harassed for having a glass of wine while pregnant, refused service, criminalised, and even sterilised to achieve this goal. The message that underlies all this is clearly one of the undesirability of disability (as well, of course, of it being the woman’s fault).

Obviously there’s a difference between trying to prevent disability in an otherwise healthy pregnancy, and terminating the pregnancy you actually have because of a disability. But that difference isn’t captured by many of the arguments we’re hearing from the anti-repeal side, which talk about birth rates for children with Down Syndrome in Iceland and solemnly warn about a future with no disabled children, in language appropriating the Holocaust. Their stats about Iceland are wrong, as we know, but what if they were right – and what if the reason they were right was not because of high abortion rates where DS was detected, but because of health or lifestyle changes that helped diminish the incidence of DS pregnancies in the first place? Would they be out protesting folic acid suppliers for their role in the genocide of disabled children?

Of course they wouldn’t, and this most of all is what bothers me about the use of children with Down Syndrome in anti-abortion campaigns. It’s a sort of fetishisation of disability, something they would otherwise find deeply undesirable, something they would actually put women in prison to prevent. I’m aware of course that people with disabilities have their own – non-homogeneous – views about their disabilities (no doubt deeply influenced by the barriers society places in front of them, something anti-choicers show little concern about) but that’s not the place where the anti-repeal leaders are coming from. Especially when you know they’d be the first to criticise women for not doing pregnancy right.

Damned if we do have disabled children, damned if we don’t. Almost as if it’s not really about the children at all.

 

With thanks to Danielle and Beth

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About Wendy Lyon

Fighting a lonely battle for evidence-based policy and the proper use of apostrophes.

One response »

  1. You’re very right about the scrutiny pregnant women go through. Can’t even go to the gym or eat sushi without some nosy creeps (many times male) trying to tell you not to do those things.
    Also, your last line is spot on. It was never about the children. It has always been about oppressing women and maintaining them as baby incubators – as and when the men please. It has always been about dictating women, because they are not allowed to make their own decisions in a patriarchal world. It has always been about making women uncomfortable and feel ‘punished’ so that certain men can feel ‘in control’ and like they have autonomy over women.

    Reply

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